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Desmoplastic Small Round Cell Tumor
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CANCER.... WHAT A TERRIBLE WORD. NOBODY SHOULD HAVE TO ENDURE SUCH A THING. I AM STILL LEARNING ABOUT THE CANCER I HAVE . DESMOPLASTIC SMALL ROUND CELL TUMOR,TOOK THE DOCTORS NEARLY A MONTH TO FIGURE OUT WHAT TYPE I HAD. YOU SEE THIS IS A RARE CANCER FOR ME IT NORMALLY EFFECTS MALES.
 
MY NAME IS SHAWN AND I AM A 30 YEAR OLD FEMALE. I AM MAKING THIS WEBSITE TO HOPEFULLY HELP OTHERS WITH THE SAME DISEASE. I HAVE SEARCHED THE NET FOR SURVIVORS AND HAVE FOUND VERY LITTLE WITH MORE THAN A 2 YEAR TIME FRAME OF THEIR LIVES. THE ONES I HAVE FOUND HAVE BEEN VERY HELPFUL TO ME AND HAVE GIVEN ME HOPE. I THANK YOU FOR THAT.

WHAT IS DSRCT?

  DSRCT is a malignancy first described in the literature by Dr. Rosai of Memorial Sloan-Kettering Cancer Center in New York in 1991.The malignancy most commonly occurs in young males of adolescent age and is characterized as a large intra-abdominal mass with no apparent origin first spreading to the peritoneal surfaces, then to the liver, lymph nodes and/or lungs.   Since this lesion is normally not attached to an organ, it usually grows to a very large size and spreads to other parts of the body before the person experiences any ill effects of the disease.  Typical symptoms include intestinal blockage, swelling and pain in the abdomen and/or fever.  Since DSRCT is so rare, probably less than 200 cases reported, statistics are unreliable.  It appears that approximately 3/4 of cases are male with an average age in the late teens or early twenties and that over 95% of the cases had tumors located in the abdomen/pelvic area.

  Early reports describe a dismal prognosis for DSRCT due to its aggressive behavior and general non-responsiveness to known treatments of similar malignancies.  However, in the past several years, there have been treatments developed that show promising results with many patients experiencing complete remissions sustained for longer than two years.

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I would like to thank all of my family and friends for being there for me,the community of Durand(the town in which I live), the parents and children of my bus,my wonderful co workers at the bus garage, if it wasnt for you guys my children would have went without a christmas this year. Thank you from the bottom of my heart.
Mom thank you for taking care of me and my children when I was unable, and for putting up with me.
Thank you Sherry for taking on my family as if it was your own,for putting up with my squawky birds,hairy dog,and stinky cat.Thank you.And to my friend Michelle thank you for helping me with this website and for being there to talk to,and to my mother-in-law Donna, thank you so much for trying to help me fight this.I would also like to thank the Durand Hockey club for all the help you have giving me and my family. I will beat this no matter what it takes.
 
 
 

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